Living With Huntington’s: Inheriting Risk, Finding Purpose

Living With Huntington’s: Inheriting Risk, Finding Purpose

🎧 Listen to the Episode Episode Summary  In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD).  Just as Erin and her husband...
The importance of patient partners

The importance of patient partners

Congrats to Canadian Medical Association Journal (CMAJ) for the publication recognizing the importance of patient partners and embedding the patient voice. A great read if you have not seen this! “Patient engagement is not a fad or a trend. It brings unique...