Breaking the Silence: Harjeet Kaur on Rare Cancer, Cultural Stigma, and Turning Pain into Purpose

Apr 10, 2026

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Episode Summary

In this powerful episode of Amplify: Elevating Patient Voices, Harjeet Kaur shares her journey through an ultra-rare stage IV blood cancer—subcutaneous panniculitis-like T-cell lymphoma (SPTCL)—and the life-altering moments that followed. From months of unexplained symptoms and relentless advocacy for answers, to undergoing a stem cell transplant during the height of COVID-19, Harjeet’s story is one of resilience, courage, and survival. 

But her journey goes beyond the medical. As a South Asian woman, Harjeet opens up about the cultural silence surrounding cancer, the stigma she faced, and the emotional weight of navigating illness without open conversations. Today, she is using her voice to break that silence—advocating for awareness, representation, and more inclusive support systems for patients from underrepresented communities.

Why You Should Listen

  • To hear a deeply human story of survival, strength, and transformation
  •  To understand how culture and stigma can shape the cancer experience
  •  To learn why patient advocacy—especially self-advocacy—can be life-saving
  •  To gain insight into the challenges faced by young adults and immigrants navigating healthcare systems
  •  To be inspired by how one voice can create impact, build community, and drive change

Episode Highlights

00:00 – Introduction to Harjeet’s ultra-rare cancer journey
03:39 – Early symptoms and being dismissed as “just a viral illness
06:02 – Months without answers—and fighting to be heard
07:50 – The life-changing moment: stage IV cancer diagnosis at 32
10:37 – Emotional impact and silent suffering
14:47 – “I want to live”: facing limited treatment options
15:47 – Choosing a stem cell transplant—and her brother as donor
17:37 – Transplant during COVID and complete isolation
19:32 – Cultural stigma and silence around cancer in South Asian communities
24:47 – Turning pain into purpose: advocacy and building Chai & Hope

Harjeet Kaur

Patient Advocate | Speaker | Breaking stigma in South Asian Community | Bringing Health Equity

 

Experienced Business Development Manager with a demonstrated history of working in the information technology and services industry. Skilled in Research, Market Research, Microsoft Word, Microsoft PowerPoint, and Marketing. Strong sales professional post graduated from University of Wales, Swansea

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Medical Disclaimer:

The content shared on Amplify is for informational and educational purposes only.

Nothing discussed on this podcast—including stories, experiences, perspectives, or commentary from hosts, guests, or contributors—should be interpreted as medical advice, diagnosis, or treatment recommendations.

Always seek the guidance of your physician or other licensed provider with any questions regarding your health, medical conditions, or treatment options.